125 | AAC part 1 with Lilly's Voice

125 | 125 AAC 第 1 部分(莉莉的声音)

EVOLVE with Dr. Tay: the podcast for parents of autistic kids

育儿

2024-07-31

47 分钟

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ABOUT THIS EPISODE (+ scroll for resources) 👇 In this episode, Dr. Tay welcomes Stefanie, the president and co-founder of the nonprofit Lilly's Voice. Stefanie shares the inspiring story of her non-speaking autistic daughter, Lilly, whose journey with augmentative and alternative communication (AAC) devices led to the creation of the nonprofit. Lilly’s Voice provides AAC devices to children who have communication differences for families who cannot access these tools through conventional means, such as through school funding, insurance, or other grant mechanisms. Lilly’s Voice also provides education on AAC. The episode covers the importance of AAC, debunks common myths, and emphasizes best practices for parents to support their children's communication. Stefanie also discusses fundraising efforts and the impactful work of Lilly’s Voice. 00:00 Introduction to Lily's Voice Nonprofit 02:19 Meet Stephanie: The Inspiration Behind Lily's Voice 03:32 The Journey to AAC: Challenges and Discoveries 05:51 Launching Lily's Voice: A Nationwide Nonprofit 08:34 Understanding Apraxia and the Role of AAC 12:11 Debunking Myths About AAC 20:01 Navigating the Process of Acquiring AAC Devices 25:48 How Lily's Voice Supports Families 27:18 App Limitations and Popular Choices 28:02 Guidance for Parents on Choosing Apps 30:20 Personal Experiences with AAC Apps 31:28 Best Practices for AAC Devices 34:55 Learning and Customizing AAC Devices 40:12 Fundraising and Support for Lily's Voice 45:25 Encouragement and Final Thoughts 46:39 Conclusion and Next Steps RESOURCES ⚡️ learn more about Lilly's Voice, apply for a scholarship, and learn about AAC on their website ⚡️ connect with Stefanie through the nonprofit’s Instagram account @lillysvoice and Lilly’s personal page @afriendforlillybug ⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com ⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism ⚡️ learn from me and submit your questions [could be featured on a future episode] >> Instagram @the.dr.tay TikTok @the.dr.tay LinkedIn @the-dr-tay

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