124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar

124 | 124 与 Kaligirwa @blackspectrumscholar 一起探索自闭症社区的社交媒体、研究和 BIPOC 代表

EVOLVE with Dr. Tay: the podcast for parents of autistic kids

育儿

2024-07-24

55 分钟

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ABOUT THIS EPISODE (+ scroll for resources) 👇 Dr. Tay is joined by Kaligirwa @blackspectrumscholar, an AuDHD communication researcher, to discuss the intersection of neurodiversity and research, with a particular emphasis on BIPOC representation within the autism community. Kali shares her personal journey of discovering her autism diagnosis and her efforts to highlight the representation of Black autistic individuals on social media. The conversation covers broad topics such as the history of autism subtypes, the diagnostic challenges faced by BIPOC individuals, and the complexities of clinical diagnosis. Dr. Tay and Kali also delve into the importance of evolving our understanding and terminology around autism to build greater acceptance and support as well as how to use social media as a tool to learn while also knowing its limitations. 00:00 Introduction and Guest Overview 01:19 Host's Background and Podcast Purpose 02:22 Guest's Personal Journey with Autism 04:49 Challenges and Representation in Autism Research 07:14 Social Media and Misinformation 11:31 Navigating Research and Personal Experience 26:11 Discussion on Autism Subtypes and Diagnosis 30:53 Understanding PDD-NOS and Stigma 31:47 Challenges with DSM-5 Levels 32:58 Regional Differences in Diagnoses 33:44 Functional Assessment Over Levels 35:24 Issues with Profound Autism Label 37:18 Spiky Profiles and Individual Differences 39:22 BIPOC Representation in Autism Conversations 39:55 Cultural Barriers to Diagnosis 42:57 ODD and PDA: Shifting Perspectives 49:53 Complexities of Diagnosing Anxiety 51:24 Finding Affirming Practitioners 53:28 Conclusion and Final Thoughts RESOURCES ⚡️ connect with Kaligirwa on Instagram and TikTok @blackspectrumscholar and check out her resource library ⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com ⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism ⚡️ learn from me and submit your questions [could be featured on a future episode] >> Instagram @the.dr.tay TikTok @the.dr.tay LinkedIn @the-dr-tay

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